Shining a Light on Lupus
Lupus is a complex, often invisible autoimmune disease. Awareness is the first step toward better diagnosis, treatment, and community support. I'm here to help you navigate the complexity.
What is Lupus?
Lupus is a chronic autoimmune disease in which the body's immune system becomes hyperactive and attacks normal, healthy tissue. This results in symptoms such as inflammation, swelling, and damage to joints, skin, kidneys, blood, the heart, and lungs.
Because its symptoms mimic so many other diseases, it is often called "The Great Imitator." On average, it takes nearly 6 years from the first onset of symptoms for people with lupus to be accurately diagnosed.
Extreme Fatigue
A level of exhaustion that doesn't improve with rest, often impacting daily activities.
Joint Pain
Pain, stiffness, and swelling that often moves from one joint to another.
Butterfly Rash
A characteristic rash across the cheeks and bridge of the nose.
Sensitivity
Increased sensitivity to sunlight or artificial light (photosensitivity).
Advocacy Toolkit
You are your own best advocate. Use these resources to bridge the gap between your lived experience and clinical care.
Doctor's Visit Guide
How to prepare for your appointments and ensure you're heard.
Symptom Tracker
A structured way to log your daily health for better clinical data.
Legal Rights info
Understanding ADA and work accommodations for chronic illness.
Community Support
Connecting with national and local Lupus support networks.
Need Personalized Support?
Navigating life with a chronic condition is hard. My coaching specialty is helping you find your rhythm after a diagnosis.
Learn about Specialized Coaching